So it has been a while since I have written. Last time we were at almost 2 months post Type 1 diagnosis. At that time I didn't think life could get any busier. Well here we are at 8 1/2 months since we learned of our life change. It has been a roller coaster ride and we aren't even at a year yet. For the better part of the last 8 months, Jack has been in what is called the "honeymoon" phase of his disease. What that means is that his pancreas has kicked in and been producing the last amounts of insulin (beta cells) that are stored in it. We don't know how long it will last and it is different for every child. We do feel that over the last month or so he is beginning to come out of honeymoon. His blood sugars have been more all over the place with no explanation. At his last endo appointment in December his A1C was up just a little bit. The added steps of everything that is associated with this has just become part of the routine. Sometimes I think that Jon and I forget about it until we have a low blood sugar or a really high one and then we remember that there is no rhyme or reason to this. Jack is constantly putting on weight and beginning to grow height wise again. That makes us happy.
School is in full swing - in fact he just ended the second 9 weeks, which means they are half way done with school. There was some argument with the county at the beginning of the school year about getting a nurse back to the school. It got to the point to where I had to call Grace and let her handle the situation as there was nothing I could say to get the county doctor to understand we weren't moving schools. Jack has had a really great year up to this point. His behavior is doing well. He has had a few problems but his teachers are helping him work through them. His teachers are amazing this year! I absolutely love them. They have been willing to learn everything that goes along with his diabetes and have been very receptive to the help that Melissa is giving them each week in regards to his ADHD/ODD.
The next step of our journey that we have begun is getting an insulin pump for him. He is so excited about getting this. He knows the rules behind it and is happy that he will be able to play soccer again. We are also working on another tool for his success with this disease but that is a post all unto its own.
For Now.
Kim
Park City Utah
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