One of those days..

Today has just been one of those days. Well the last 36 hours has been rough. Yesterday was Jack's 3 month check up with the endocrinologist. His A1C went up - as we were expecting. Talked with the ARNP about some issues we are having at school and about his Diabetic Alert Dog. He wanted to take those things to the doctor to get his opinion on them. The phone call that I got after everything was presented to the doctor was not what I was hoping for. Even after expressing to them that Jack did not want to be on the CGM, the doctor really wants him to be. Like I told the ARNP, while I know the purpose of the CGM would be wonderful if there is not a responsible adult other than the nurse to help if there is an emergency then what is the point. Then they suggested again that we think about changing his school to one where they are willing to be more accommodating with staff training (other than the nurse). If we were just dealing with his T1 then I would be all for that but we are not. It is very difficult to make a change of that magnitude with Jack. We would be taking such a ginormous step backwards that it would negate everything that we have done to this point. I'm just really confused. I wish there was a better way to say it but there's not. My brain is tired from all of this. The lack of understanding and willingness to understand is dumbfounding. We asked the ARNP if the doctor could write us a letter of medical necessity for Izzy. The answer we got was not what I had thought we would get. The doctor said that since he did not know of any of his patients that were using one and since he doesn't have any data from research proving the effectiveness of these animals that he would not write one. I understand his reasoning to a point. That's fine if he doesn't want to write the letter, Jack's pediatrician is writing one.

Just to be able to have the discussion about Izzy going to school with Jack requires letters of medical necessity from at least one doctor, as well as, proof of our trainer's certification, the dog's certification, and certification that Jack has been trained on how to handle the dog. Even after all of that is turned in they can still deny Jack the opportunity to have Izzy at school with him. Now do you understand why my brain is tired. That doesn't even include the IEP meeting I am trying to get scheduled so that NO ONE at his school will try to take his insulin pump away. It is like trying to get a bill passed in Congress to get this meeting set up. You would think that they would try to be flexible around the parent's schedule - NO! I was basically told that this is the only date and time that we have and if you can't be here than it is going to be another month before we can get it scheduled. I'm sorry but this is concerning my son's life not just a piece of paper.

Jack has had a really rough day with listening to me and following my directions - or any directions, to be honest. For whatever reason, his ADHD/ODD seemed to be in full gear today and that compounds any other thing that is going on and makes him difficult to work with. There has been quite a bit of anger and frustration in the house today.

I honestly don't know what to do anymore concerning all of this. I don't know if it would just be best to pull him out of school all together and either do homeschool or virtual school. I'm not sure that even changing his school would be a better option because there is no guarantee that the administration will be any better towards any of this. It's difficult to be in this position because there are not many people you can talk to about what is going on. Most people don't have any of this to worry about and I don't want to come across as I'm complaining all of the time. It's a lonely place that I stand in. I know that Jon and the Lord are there but it is still lonely. I know that God will see us through this valley we are in. I know that He is not waiting at the other side of the valley but He is IN the valley with us guiding us along the way. I know that is the only thing that keeps me from losing my mind - to know that I'm not truly alone. Even when it's been one of those days.